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Registry Project Lead - Remote Impact for MPS I

National MPS Society

The National MPS Society seeks a Registry Project Lead to manage the MPS I Registry, ensuring reliable real-world evidence to inform families, clinicians, researchers and regulators. You will be the sponsor lead, align with leadership, and guide CROs to deliver on time and within budget. You'll oversee governance, analytics, and eventual expansion to related disorders, collaborating with CSO, CEO and cross-functional partners while ensuring regulatory compliance and patient-centered outcomes.

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Vacancy posted 1 day ago
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