Patient Education Manager, NF1 PN, West

This is what you will do: The NF1 PN Patient Education Managers (PEMs) are an empathetic and trusted educational resource for NF1 patients and families. They are responsible for engaging with the local NF1 patient community via 1:1 meetings; conducting unbranded and branded patient education at scale through programs; and (in close collaboration with Alexion’s Patient Advocacy team) partnering with local and regional NF1 advocacy groups to further raise awareness of NF1 burden, NF1 disease progression, and NF1 PN treatment. In addition to these responsibilities, PEMs also refer patients and caregivers to Case Managers for case management support when starting on Alexion therapy and connect the NF1 community, as appropriate, to local advocacy networks and approved resources to best support patients and their families through the treatment journey. You will be responsible for: Developing, in close partnership with Alexion Patient Advocacy and NF1 PN brand marketing, a regional patient engagement plan that strategically supports commercial priorities Coordinating frequently with key cross functional partners to execute local patient outreach compliantly and effectively (e.g.: Compliance, Legal, Marketing, Market Access, Medical, Patient Advocacy, Patient Services, etc.) Educating patients and caregivers via 1:1 meetings, including face-to-face interactions, about NF1 disease state, NF1 PN treatment, and Alexion’s patient support programs When possible, conducting impactful in-person or virtual educational events on behalf of Alexion to deliver disease and product information at scale Building a robust rare disease network of NF1 PN advocates via active participation in local advocacy events to identify educational needs, raise disease awareness, and promote patient empowerment Delivering on data driven performance objectives and effectively tracking and communicating year-to-date progress to cross functional partners and Alexion leadership You will need to have: Minimum of 4 years business experience in the healthcare industry Experience engaging with patients and caregivers with rare/chronic conditions Empathy for others with proven ability to listen well, connect meaningfully, and present complex information in a clear and engaging manner during 1:1 meetings High initiative, solid work ethic, and consistent accountability Ability to adapt quickly and commitment to react positively to frequent change in a high-energy, fast paced environment Excellent presentation skills to diverse stakeholders in varied settings that will include groups of 150+ people Strong organizational capabilities that will facilitate strategic and efficient territory management over a large geography Ability to travel 60-80% of time, including evenings and weekends. Willingness to attend in-person impromptu trainings, educational programs, and business meetings as necessary. Potential territory to cover includes the following states: Alaska, Arizona, California, Hawaii, Idaho, Iowa, Minnesota, Montana, Nebraska, Nevada, New Mexico, North Dakota,Oregon, South Dakota, Utah, Washington, Wyoming Valid driver's license and clean driving record BA/BS degree is preferred, advanced degree a plus We would prefer for you to have: At least three years field-based experience in account management, patient education, or sales Experience assisting patients/caregivers Background in advocacy, nursing, rare disease support, or social work Understanding of community engagement groups and non-profit organizations Understanding of managed care and self-administered products Familiarity with relevant legal and regulatory components of the pharmaceutical and biotech industries; rare disease specific knowledge of these elements is a plus Knowledge of Oncologic, Neurologic, or Rare Disease conditions Bilingual, Fluent in reading and speaking Spanish The annual base pay for this position ranges from $135,332 to $202,998. Hourly and salaried non-exempt employees will also be paid overtime pay when working qualifying overtime hours. Base pay offered may vary depending on multiple individualized factors, including market location, job-related knowledge, skills, and experience. In addition, our positions offer a short-term incentive bonus opportunity; eligibility to participate in our equity-based long-term incentive program (salaried roles), to receive a retirement contribution (hourly roles), and commission payment eligibility (sales roles). Benefits offered included a qualified retirement program [401(k) plan]; paid vacation and holidays; paid leaves; and, health benefits including medical, prescription drug, dental, and vision coverage in accordance with the terms and conditions of the applicable plans. Additional details of participation in these benefit plans will be provided if an employee receives an offer of employment. If hired, employee will be in an “at-will position” and the Company reserves the right to modify base pay (as well as any other discretionary payment or compensation program) at any time, including for reasons related to individual performance, Company or individual department/team performance, and market factors. Date Posted 30-Jun-2026 Closing Date 13-Jul-2026 Our mission is to build an inclusive environment where equal employment opportunities are available to all applicants and employees. In furtherance of that mission, we welcome and consider applications from all qualified candidates, regardless of their protected characteristics. If you have a disability or special need that requires accommodation, please complete the corresponding section in the application form. For over three decades, patients and their caregivers have been at the center of everything we do. Every day, we are inspired to follow the science and think differently to create better outcomes for them and their families. Our mission is driven by understanding who they are as unique individuals, not solely defined by their diseases. We’re a leading rare disease company with a diversified projects. Our pioneering legacy in rare diseases is rooted in being the first to translate the complex biology of the complement system into transformative medicines over the past three decades. Today, we continue to push the boundaries of science and deepen our understanding of rare diseases with patient-centricity at the core. This knowledge allows us to innovate and evolve into new areas where needs are unmet and provide an opportunity to help people fully live their best lives.