Associate Director, Neuromuscular, US Patient Advocacy

Job Description Summary The Associate Director, Neuromuscular, US Patient Advocacy collaborates with relevant Neuromuscular patient communities (including but not limited to DMD, DM‑1, FSHD) to understand unmet needs that inform business strategy, mobilize and empower the patient community and those who care for them to seek the best care, and reduce access barriers. Preferred location: East Hanover. Remote work may be possible, but relocation will not be provided. Remote employees are responsible for all home‑office expenses and any travel/lodging for periodic live meetings. Working hours and travel expectations (domestic and/or international) will be defined by the hiring manager. Key Responsibilities Build and maintain trusted and strategic long‑term relationships with patient organizations and communities in relevant Neuromuscular disease areas, centered on two‑way communications and collaborations to advance shared priorities. Identify the right patient organizations to drive strategic collaborations and partnerships that help educate and mobilize patients to seek optimal care and elevate the voice of the patient to inform decision‑makers in the patient treatment journey, including HCPs, policymakers and payers. Execute integrated patient advocacy strategies aligned to critical business and corporate priorities based on a deep understanding of the patient/care partner experience and unmet needs. Ensure patient/care partner insights and implications for launch and growth brands are systematically actioned across corporate affairs and with cross‑functional partners. Stay abreast of key environmental and policy issues impacting the company’s ability to operate and pre‑emptively drive initiatives and build relationships to shape the environment. Develop AI‑enabled educational programs and resources that address unmet patient and caregiver needs and drive business objectives. Monitor and evaluate performance to achieve and maintain best‑in‑class outcomes, while being fully compliant. Effectively manage budget and maximize agency ROI. Essential Requirements Bachelor’s degree required. 8+ years of experience in patient advocacy or a related discipline with a healthcare and/or pharmaceutical background; prior experience in neuromuscular and rare disease areas preferred. 1–2 years industry patient advocacy role required. Demonstrated ability to build trusting relationships with patient organizations, professional associations and other stakeholders. Commercial launch experience. Development and implementation of integrated plans and projects against business objectives and priorities. Influencing and navigating complexity. Management of agency partners and budget. Crisis and issues management. Desirable Requirements Understanding of US policy, regulatory and compliance landscape. Excellent written and verbal communication skills. Excellent people & communication skills. Ability to influence across a diverse set of matrix cross‑functional partners. Business acumen, critical thinking and collaborative enterprise mindset. Ability to multi‑task and manage complex issues. Ability to operate within a dynamic & ambiguous environment while maintaining integrity. Benefits & Rewards The salary for this position is expected to range between $126,000 and $234,000 per year. The final salary offered is determined based on relevant skills and experience, and upon joining Novartis will be reviewed periodically. Novartis may change the published salary range based on company and market factors. Compensation will include a performance‑based cash incentive and, depending on the level of the role, eligibility to be considered for annual equity awards. US‑based eligible employees will receive a comprehensive benefits package that includes health, life and disability benefits, a 401(k) with company contribution and match, and a variety of other benefits. Employees are eligible for a generous time‑off package including vacation, personal days, holidays and other leaves. EEO Statement The Novartis Group of Companies are Equal Opportunity Employers. We do not discriminate in recruitment, hiring, training, promotion or other employment practices for reasons of race, color, religion, sex, national origin, age, sexual orientation, gender identity or expression, marital or veteran status, disability, or any other legally protected status. Accessibility and reasonable accommodations The Novartis Group of Companies are committed to working with and providing reasonable accommodation to individuals with disabilities. If, because of a medical condition or disability, you need a reasonable accommodation for any part of the application process, or to perform the essential functions of a position, please send an e‑mail to View email address on click.appcast.io or call View phone number on click.appcast.io and let us know the nature of your request and your contact information. Please include the job requisition number in your message. #J-18808-Ljbffr Legend Biotech USA