Director, Key Opinion Leader Marketing, Rare Disease
Ipsen Biopharmaceuticals Inc.
Title:Director, Key Opinion Leader Marketing, Rare Disease Company:Ipsen Biopharmaceuticals Inc.
About Ipsen: Ipsen is a mid-sized global biopharmaceutical company with a focus on transformative medicines in three therapeutic areas: Oncology, Rare Disease and Neuroscience. Supported by nearly 100 years of development experience, with global hubs in the U.S., France and the U.K, we tackle areas of high unmet medical need through research and innovation. Our passionate teams in more than 40 countries are focused on what matters and endeavor every day to bring medicines to patients in 88 countries. We build a workplace that champions human-centric leadership and fosters a culture of collaboration, excellence and impact. At Ipsen, every individual is empowered to be their true selves, grow and thrive alongside the company’s success. Join us on our journey towards sustainable growth, creating real impact on patients and society! For more information, visit us at and follow our latest news on LinkedIn and Instagram.
Job Description: Ipsen’s Rare Disease franchise has been expanding through both organic growth and acquisitions. From a marketing standpoint, there is a critical need for excellence in strategic planning and excellence in execution to clearly define how we will best drive education of appropriate healthcare providers, deliver successful launches, and innovate for patients in complex and competitive therapeutic areas. The Director, Key Opinion Leader Marketing, Rare Disease is a strategic leader within the U.S. Rare Liver Marketing team, responsible for defining and advancing the peer-to-peer engagement strategy across the portfolio. This role serves as the architect of Ipsen's external expert engagement ecosystem, shaping how scientific leaders, advocates, and peer influencers are engaged to advance disease-state education, support earlier diagnosis, inform brand strategy, and drive adoption across existing and future portfolio assets. This role requires deep expertise in external expert engagement, peer-to-peer education, and congress strategy, as well as the scientific acumen, executive presence, and cross-functional leadership necessary to influence senior stakeholders and drive portfolio-wide impact. This role owns the strategic direction and governance of speaker bureau excellence, KOL engagement, peer-to-peer education, and congress activation across the U.S. rare disease portfolio. This individual ensures a coordinated and highly credible external engagement approach that elevates Ipsen's scientific leadership and commercial impact.
WHAT - Main Responsibilities
- Peer Engagement Strategy Own and evolve the enterprise peer-to-peer engagement strategy across the U.S. Rare Disease portfolio, ensuring alignment with portfolio growth objectives, competitive dynamics, and future launch priorities
- Establish portfolio-level KOL, speaker, and advocate engagement frameworks, segmentation approaches, and investment priorities that maximize scientific influence and educational impact
- Build a credible, science-driven peer-to-peer offering aligned to portfolio priorities including tools and resources for TLL team
- Prioritize peer-to-peer programs and channels to expand reach and frequency across key stakeholders
- Build and manage congress roadmap, capabilities, and continually improve associated processes
- Ensure a single, cohesive peer-to-peer experience aligned to brand strategy and priorities
- Shape how peer influence is leveraged across the customer journey to support disease-state awareness, diagnosis acceleration, treatment adoption, and launch readiness
- Own and continuously evolve the portfolio speaker bureau strategy, governance, and operating model, ensuring alignment to business priorities and maximizing the impact of peer-to-peer engagement investments
- Establish governance and oversight for speaker engagement, contracting, fair market value rates, utilization, and HCP transparency practices across the rare disease portfolio.
- Define and lead the portfolio congress strategy, including prioritization of investments, scientific engagement plans, sponsorship opportunities, and cross-brand activation designed to maximize organizational impact
- Direct the design and execution of integrated congress and peer-to-peer engagement plans that advance disease-state education, strengthen scientific leadership, and support portfolio growth objectives.
- Lead strategic partnerships with agencies and external vendors, ensuring delivery of innovative, high-impact engagement programs while optimizing resource allocation and return on investment.
- Partner with Medical, PRC, Legal, and Business Ethics to establish governance frameworks and ensure compliant execution of peer engagement activities across the portfolio.
- Serve as the organization’s center of excellence for peer engagement strategy, establishing standards, governance, and best practices across the rare disease portfolio.
- Define KPIs and measurement to optimize speaker and congress program performance and ROI
- Own portfolio speaker bureau and congress budget planning and resource allocation Ensuring on-time and on-budget delivery of congresses, and sponsorships
- Synthesize insights from KOL interactions, congress engagement, speaker bureau activity, and competitive intelligence to inform portfolio strategy, launch planning, and business decision-making
- Establish clear governance, decision-making, and prioritization across the team and partners
- Drive alignment with Brand, Sales, TLL, Medical, PRC and Business ethics
- Influence senior leadership through data-driven recommendations regarding market dynamics, emerging scientific trends, KOL sentiment, and external stakeholder priorities
HOW - Knowledge & Experience
- Significant experience (12+ years) of commercial pharma experience, including U.S. peer-to-peer, speaker, or HCP marketing roles in rare disease and/or specialty markets
- Proven success managing a speaker bureau, delivering peer-to-peer programs and working with KOLs
- Proven experience planning and executing local, regional, and national congresses
- Experience building peer-to-peer and speaker programs in rare or ultra-rare diseases
- Strong understanding of medical, legal, and regulatory (MLR) requirements governing peer-to-peer programs
- Strong communication and interpersonal skills along with the ability to influence others
$225k - $300k
## Director, Medical Affairs, Rare DiseaseApplylocations: Cambridge (US)time... ...Affairs, Rare Disease**Company:**Ipsen Biopharmaceuticals... ...and overseeing key Medical Affairs... ...medical and scientific leader for the therapeutic area... ...with key opinion leaders, and incorporate...SuggestedTemporary workLocal areaFlexible hours- Ipsen Biopharmaceuticals Inc. is seeking a Director of Key Opinion Leader Marketing in Rare Disease to shape external expert engagement and education. You will define strategy, govern speaker programs, and drive adoption through peer-to-peer initiatives with KOLs, advocates...Suggested
- ...across dozens of severe autoimmune diseases.We are building a new kind of... ...direct reports as a people leader, and is a leader for... ...research, development, and/or marketed product needs.In partnership with... ...experience in auto-immune or GI or rare diseases or respiratory is a plus...SuggestedFull timeWork at officeFlexible hours
$183k - $252k
About this roleThe Associate Medical Director, Rare Disease role is a part of North America (United States... ...meaningful patient outcomes. As a key member of the US Rare Disease Medical Director... ..., Pharmacovigilance, Commercial, Market Access). Collaborate with global,...SuggestedFull timeTemporary workWork at officeLocal area$185k - $215k
...possibilities. You’ll find that rare opportunity at... ...for challenging diseases in the areas of... ...Overview The Associate Director, Thought Leader Liaison (TLL) is a highly... ...-based strategic marketing leader responsible... ...meaningful engagement with key opinion leaders (KOLs) and...SuggestedTemporary workWork at officeFlexible hoursAfternoon shift$183k - $252k
...About this role The Associate Medical Director, Rare Disease role is a part of North American... ...improve meaningful patient outcomes. As a key member of the US Rare Disease Medical Directors... ..., Pharmacovigilance, Commercial, Market Access). Collaborate with global, regional...Temporary workFor contractorsWork at officeLocal area$148.5k - $214.5k
Job title: Associate Director, Digital Marketing, Rare HematologyLocation: Cambridge, MAAbout the JobThe Associate... ...people with immune challenges, rare diseases, cancers, and neurological conditions... ...digital marketing channels and the key benefits that each achieve at driving...Full time- ...we research, develop, and market innovative drugs across... ...the better. Chiesi Global Rare DiseasesChiesi Global Rare Diseases is a Chiesi Group’s business... ...partner with global leaders in scientific research, patient... ...you will doThe Senior Director, RWE is accountable for...Hourly payWork at officeLocal areaRemote workRelocation packageFlexible hours
$143.25k - $210k
## Associate Director, Operations, Rare Disease Business UnitApplylocations: Cambridge... ...communication, and execution of key business priorities.The... ...and Head of Thought Leader Liaisons (TLLs) to enhance... ...breadth of knowledge in Sales & Marketing* Ability to prepare &...Temporary workHome officeFlexible hours$192.4k - $302.39k
...in Cambridge, MA.Key ResponsibilitiesCo... ...CIDP, and related disease areas.Co-lead scientific... ...with key opinion leaders and other external... ...operating companies, Market Access, Global Outcomes... ...plusExperience in rare diseases (i.e.... ...roles (e.g. Medical Director, Medical Science...Minimum wageLocal areaRemote work- ...Apellis Pharmaceuticals, Inc. in Cambridge, MA seeks a Director of Business Intelligence (BI) to drive market insights for EMPAVELI in PNH. You will partner... ...extensive analytics experience in biotech, rare diseases, and hands-on modeling in Excel with Power BI. Hybrid...
- ...Insights, AIM, Global Rare Diseases Date: Sep 24, 2026... ...Business Area: Mktg, Market Access, Bus. Excellence... ...dedicated partner with global leaders in scientific research... ...to the Senior Director, Global Strategic Insights... ...state, use the arrow keys to move the marker. To...Hourly payPermanent employmentContract workLocal areaRemote workRelocation packageFlexible hours
$152.6k - $283.4k
...dystrophy (FSHD). As the Associate Director, Patient Marketing Strategy, you will develop... ...initiatives that support disease awareness, engagement, and... ...agency partners, you will play a key role in strengthening... ...commercial marketing with either rare disease, specialty,...Local areaRemote workRelocationShift work$165k - $236k
...Notice**Title:**Associate Director, Neuroscience Marketing, Migraine HCP Marketing**... ...areas: Oncology, Rare Disease and Neuroscience. Supported... ...migraine space and will key in the development and execution... ...professionals, and key opinion leaders to enhance the reach and...Temporary workFlexible hours- Biogen is seeking an Associate Medical Director for Rare Disease in the US to drive medical strategy for SMA and ALS. You will collaborate with Global Medical, Clinical Development and Field Medical to ensure alignment with global strategy and local needs. Responsibilities...Local area
- Biogen, Inc. in Cambridge, MA, is seeking an Associate Medical Director for Rare Disease focused on SMA and ALS to support the US Medical Strategy. This role is hybrid, based in Cambridge, and reports to the Medical Director. You will collaborate with US Field Medical,...
$191k - $280k
...Title:Director, Onivyde Omnichannel and Patient Marketing Company:Ipsen Biopharmaceuticals Inc. About Ipsen: Ipsen... ...three therapeutic areas: Oncology, Rare Disease and Neuroscience. Supported by... ...and Omnichannel Marketing, is a key strategic leadership role within...Temporary workFlexible hours$183k - $252k
...Associate Medical Director supporting US medical strategy development for Friederichs Ataxia... ...stakeholder engagement to advance rare disease therapeutic initiatives. Responsibilities... ...Build and maintain relationships with key medical experts, healthcare institutions...- Biogen’s Rare Neurology Development Unit (RNDU) in Cambridge, MA, seeks an Associate Medical Director to advance early and late-stage programs for SMA, ALS and rare movement disorders. You will help design trials, interpret results, and guide regulatory interactions across...
$178.5k - $257.83k
Job title : Director, Field Reimbursement - Rare Blood Disorders, West Location... ...challenges, rare diseases, cancers, and neurological... ...empower, and retain key talent by using... ...Service Teams, Market Access, Policy, Public... ...energetic, driven dynamic leader Excellent strategic...Remote work$161.5k - $218.5k
OverviewThe Associate Director, Downstream, Emerging Modalities,... ...technically strong downstream leader who can define purification... ...primarily located in Cambridge, MA.Key ResponsibilitiesLead... ...transform the lives of people with rare and common diseases. Built on Nobel Prize-...Full timeTemporary workLocal areaFlexible hours$167k - $286k
...SciencesPosted: 2026-10-05Associate Director/Director, Platform and... ...breakthroughs that treat both rare and prevalent disorders. Our toolkit... ...that optimally address disease biology. Our diversified pipeline... ...communications across audiences on key milestones and data Represent...Full timeContract workTemporary workSummer workWork at officeLocal area$170k - $201k
...Neurology.Role SummaryThe Associate Director, Neurology Market Insights will report into the Sr. Director... ...in developing launch Key Performance Indicators (KPIs). Responsible... ...decisionsLaunch planning experience in rare diseases and/or neurology is a plusPersuasive...Temporary workWork at officeFlexible hours2 days per week3 days per week$123.75k - $178.75k
Job Title: Associate Director, Market Access TrainingLocation: Cambridge, MAAbout... ...performs: the product and disease-state training and... ...people with immune challenges, rare diseases, cancers, and neurological... ...market access rolesTravel: <10%Key Internal Stakeholders:...Full timeShift work$185.37k - $308.95k
...Associate Director, Medical Review Lead, MSRM Who we are At... ...by connections to transform rare diseases. We foster an inclusive, collaborative... ...) across investigational and marketed products, ensuring medical... .... Review and approve key medical components of ICSR, including...Temporary workRemote workWork from homeFlexible hours3 days per week- ...We are seeking an Associate Director, Patient Marketing , to join our team. The... ...Marketing, will serve as a key contributor to the strategic... ...marketing strategies that drive disease awareness, patient education... ...healthcare consumer behavior, and rare or specialty pharmaceutical...Temporary workWork at officeRemote work2 days per week
$160k - $240k
...transforming the lives of patients living with rare neuroendocrine diseases. We develop medicines for previously... ...Overview Reporting to the Director, US Patient Marketing, the Associate Director, US Patient Marketing will be a key member of the US Marketing team,...Work at office- ...Chiesi Global Rare Diseases in Boston seeks an Insights Lead, AIM Franchise to lead analysis of market trends, customer behavior and industry insights for LSD portfolio. The role is global in scope and requires developing a coherent data collection strategy across primary...
$180k - $247.5k
...Role: As the Associate Director, Thought Leader Liaison (TLL) for... ...commercial liaison to Key Medical Experts (KMEs... ...working closely with marketing, medical affairs, market... ...your knowledge in disease states and healthcare... ...experience preferredRare Disease and/or nephrology...Full timeTemporary workWork at officeLocal area$230k - $285k
Data & AI : Go-to-Market Leader - Director or Senior Director - New England Region (Boston, Hartford, Manchester, Montpelier, Portland, Providence)****This role is not eligible for 100% remote work. Employees must live within a commutable distance of the Boston, MA office...Temporary workWork at officeLocal area
Do you want to receive more vacancies?
Subscribe and receive similar vacancies to Director, Key Opinion Leader Marketing, Rare Disease. Be the first to apply!
- executive team lead asset protection Cambridge, MA
- key team leader Cambridge, MA
- quality control team lead Cambridge, MA
- IT team lead Cambridge, MA
- team leader day shift Cambridge, MA
- site leader Cambridge, MA
- leader Cambridge, MA
- focus group leader Cambridge, MA
- merchandise team leader Cambridge, MA
- office team lead Cambridge, MA


