Patient Support Specialist - Bilingual (West Coast Candidates)

PTC Therapeutics seeks a Patient Support Specialist to provide comprehensive case management and patient education for rare disease patients, primarily those with PKU. The role coordinates therapy initiation, addresses adherence barriers, supports life-stage transitions, and serves as a clinical resource to the patient services team.

Responsibilities

• Educate patients and caregivers on disease state, medication safety, administration, and storage via phone, video, and approved channels
• Coordinate therapy initiation and ongoing support with Sales, Patient Engagement, and Case Manager teams to ensure seamless patient experience
• Identify and address adherence barriers including diet fatigue, psychosocial factors, and access challenges through individualized coaching
• Support critical life transitions such as adolescent independence and transition to adult care teams
• Serve as PKU subject matter expert for Patient Services staff, answer clinical questions, and develop PKU-specific workflows and education tools

Requirements

• Bachelor's degree with 5+ years clinical nutrition, nursing, or patient counseling experience
• Active dietitian or nursing license; Master's degree preferred
• Expertise in metabolic or pediatric dietetics with real-world, life-stage application
• Demonstrated proficiency in motivational interviewing, patient coaching, and behavior change support
• Experience with PKU and inherited metabolic disorders across pediatric and adult populations
• Strong patient education, documentation, and interpersonal communication skills
• Proficiency with Microsoft Office and familiarity with EMR/CRM systems preferred

Compensation: $97,100 - $122,200 base salary