Clinical Engagement Liaison

Why Join Us?

Be a hero for our rare disease patients.

At Ultragenyx, we fundamentally believe that taking real impactful action to care for the needs of patients and our people is always the right thing to do. To achieve this goal, our vision is to lead the future of rare disease medicine. For us, this means going where other biopharma companies won’t go – challenging the status quo and creating a new model that advances our field so more patients and caregivers can benefit from life-changing treatments. We do this by following the science, applying a novel rapid development approach, making innovative medicines at fair and reasonable prices, and creating a collaborative ecosystem to reach patients in ways that are most meaningful for them.

Our commitment and care for patients extends to our people, so culture is an essential cornerstone for Ultragenyx. We remain continuously focused on creating a supportive and inclusive environment of profound learning and growth – so employees can thrive in all areas of their lives, in and outside of work. Ultimately, we want to be an organization where we would be proud for our family, friends and children to work.

If you want to have a meaningful impact, do the best work of your career, and grow a lot, both professionally and personally, come join our team.

Position Summary:

ultra focused – Work together to fearlessly uncover new possibilities

Clinical Engagement Liaison is a knowledgeable healthcare provider and patient advocate who provides on-site and alternative site education to new and existing DOJOLVI patients and Health Care Providers (HCP) on topics related to Long Chain Fatty Acid Oxidation Disorder (LC-FAOD) and DOJOLVI . The CEL will provide on label facilitation of HCP prescribed titration and dosing of patient therapy by providing information and support to patients/caregiver and HCPs but providing no clinical decision making and referring back to their HCP when appropriate. Typically, this will involve working with a multidisciplinary clinic team consisting of clinical geneticists, metabolic dietitians, nurse practitioners, genetic counselors, pharmacists and other ancillary clinic staff, as well as patients and caregivers to prevent and address barriers to effective adherence to therapy.

Work Model:

Remote: Officially documented as working full-time from home, with travel to Ultragenyx's offices or other locations on occasion as needed.

Responsibilities:

• Meet with patients and caregivers to educate on most effective methods and strategies for patient to understand and adhere to the therapy prescribed by the clinic, including dosing and titration
• Support ongoing treatment adherence through personalized counseling and education
• Engage and meet with the treating HCP/Registered Dietician and other members of the patient’s care team to implement an ongoing care plan to support patients that, among other things, mitigates side effects and improves compliance with therapy to improve health outcomes
• Coordinate with other members of the Ultragenyx Patient Engagement Team as well as other Cross-Functional partners to ensure access
• Attend relevant conferences, internal meetings/training, and maintain expertise encompassing all aspects of LC-FAOD disease management

Requirements:

• 5-7 years of prior patient engagement experience required
• 3-5 years clinical educator/care coordinator experience preferred
• BA/BS in the Life Sciences, Communications or Healthcare Management related degree preferred
• Healthcare degree Registered Dietician or Nursing (NP/RN/BSN) preferred
• Ability to travel 80% of the time
• Individual must possess and portray strong emotional resilience, and calm demeanor under stress during difficult patient or medical calls or face-to-face meetings
• Strong morality, ethics, and respect for confidentiality; including commitment to providing the recommendations from the clinic only and not providing health advice that is not approved by the clinic or on medication label.

Benefits:

• Generous vacation time and public holidays observed by the company
• Volunteer days
• Long term incentive and Employee stock purchase plans or equivalent offerings
• Employee wellbeing benefits
• Fitness reimbursement
• Tuition sponsoring
• Professional development plans

* Benefits vary by region and country