Data & Bioinformatics Manager

The physical location for the candidate selected must reside within the contiguous United States. Who We Are Susan G. Komen brings a 100% virtual working environment, and you can work anywhere within the U.S. We are a force united by a promise to end breast cancer forever. For over 40 years, we've led the way by funding groundbreaking research, community health initiatives and advocacy programs in local communities across the U.S. Susan G. Komen is the ONLY organization that addresses breast cancer on multiple fronts such as research, community health, outreach and public policy initiatives to make the biggest impact against this disease. Komen strives to have a culture of passionate, growth‑minded professionals who thrive in a team environment and work collaboratively to inspire greatness in others! We take an ongoing approach to ensure open communication from all levels throughout the organization. It’s encouraged to give and receive feedback to ensure two‑way accountability with a focus on continual improvement both personally and professionally! What you will be doing in the role of a Data & Bioinformatics Manager The primary objective of the Data & Bioinformatics Manager is to manage the data and associated research datasets in ShareForCures (SFC), Komen’s breast cancer research registry, as well as coordinate the creation and implementation of the SFC data resources, tools and processes that will be used in research projects and associated programs that are part of Komen’s Big Data for Breast Cancer (BD4BC) Initiative. What You Will Bring To The Table In consultation with Manager, Data Science, lead the design and implementation of SFC data model, as well as the creation, release, and management of research datasets. Coordinate the creation and implementation of SFC data resources, tools and processes that facilitate the use of SFC data by its users. Ensure that appropriate documentation and user guides are maintained. Assess the SFC Research Hub and associated analytical platforms to identify and prioritize additional features that help researchers leverage SFC and its data. Contribute to the implementation of complex analyses and statistical tools and data science methods to 1) interpret data sets and extract trends and patterns that could be valuable for assembling cohorts, hypothesis generation, predictive analytics, and troubleshooting; 2) query data, tabulate summary statistics, and create visual representations (charts, graphs, and other methods) to effectively describe the registry (including its participants, research data, uses); 3) perform quality control checks and measures; 4) reorganize data in a format that can be easily read, filtered and used by researchers; and 5) communicate trends and patterns in datasets. Apply strong program management and administrative skills to develop project plans and timelines; monitor and manage project budgets and contracts; and ensure complete and accurate records. Develop and manage requests for proposals (RFPs) to select the most appropriate vendors to provide services for SFC. Work with vendors to facilitate efficient and ethical data collection, processing, and ensure quality deliverables are received and managed. Oversee performance of quality control checks and measures. Develop and implement strategies and related tactics to support the use of SFC by a variety of researchers across various disciplines and support the day‑to‑day management of SFC researchers, including researcher registration in SFC and review and management of data requests/research proposals. Assist other teams to create materials (e.g., emails, presentations, newsletters, etc.) needed to engage with researchers and support the use of SFC data in research projects. Participate in internal and external events as needed to support these activities. Work with advisors, external researchers, and internal research teams to explore, mine, process, aggregate/curate and visualize datasets from the registry and/or other sources. Oversee creation of appropriate documentation that allows stakeholders to understand the steps of the data analysis process and duplicate or replicate the analysis if necessary. Contribute to the development of and ensure user compliance with policies and procedures, including compliance with conducting research with human subjects. Review and resolve issues, escalating significant issues to team leadership, as needed. Manage relationships with and activities of external advisors, committees, and working groups in support of SFC and other BD4BC programs as needed. Ensure that team leadership and other members of SFC cross‑functional team are kept apprised of perspectives and insights from these advisors and groups, to inform the development and implementation of SFC. Contribute to the development of milestones, metrics, and measurable outcomes for SFC. Prepare reports as needed, to ensure internal and external stakeholders are apprised of progress and impact. Work collaboratively with other teams to coordinate ongoing communications internally and externally and represent the program to potential donors, as needed. Provide support and expertise to other research projects and BD4BC programs, as needed. Keep current and knowledgeable of industry/other organizations’ activities, best practices, and community perspectives on issues related to research and use of health/big data. Identify emerging issues/trends and potential opportunities for collaboration, sponsorship, position statements and/or policy development. Perform other duties as assigned and on time. We Know You Will Have and Be Able To Master’s Degree in Data Science/Bioinformatics; and/or Doctoral Degree: Life Science, Oncology, Public Health, Epidemiology, Data Science/Bioinformatics and at least 3 years of related experience. Demonstrated experience (>5 years) in data management, clinical research, or similar experience, particularly experience managing research studies or clinical trials that involve clinical data, genomics, patient reported outcomes and/or biosample collection. Understanding of health data standards, data structure and data quality; experience implementing CDISC Standards and/or experience working with EMR systems. Demonstrated ability to design and code algorithms in Python and/or R. Excellent interpersonal and communications (writing and speaking) skills. Ability to build trust and relationships with partners. Ability to communicate complex ideas in a clear and straightforward manner, particularly for general audiences. Self‑starter willing and able to take responsibility and ownership for producing timely and high‑quality work with limited supervision. Ability to deconstruct complex problems and develop actionable plans. A team‑oriented attitude, strong cross‑functional collaboration skills and proven ability to work remotely in a matrixed, global organization. Strong organizational and project management skills; detail oriented. Proven ability to manage a large, complex workflow with multiple deadlines, data points, and priorities. High degree of professionalism, maturity, executive presence, business understanding, cultural awareness, and sensitivity to relationships, security, and confidentiality. We Would Love If You Also Have and Are Able To Expertise in breast cancer research with publications history, particularly with applying data science methods and working with health data. 3 or more years’ experience in health data management, clinical research and/or other scientific projects management, particularly experience managing research studies or clinical trials that involve clinical data, genomics, patient reported outcomes and/or biosample collection. Experience managing a patient registry, particularly in a non‑profit environment, a plus. Understanding of clinical research methods, policies, regulations and laws relevant to patient registries including an understanding of regulations and laws over data privacy. Understanding of best practices used in research funding/grant‑making operations. So, what’s in it for you? Komen believes in the importance of taking care of our employees so that in turn they can be committed to supporting our critical mission to support those impacted by breast cancer and to help find cures. This is what Komen provides away from the computer. Approximate salary of $64,000 - $82,000/annually, exact compensation ranges are based on various factors including the labor market, job level, internal equity and budget. Exact salary offers will be determined by factors such as the candidate's skills, experience and geographic location. Health, dental, vision and a retirement plan with a 6% employer match Unlimited PTO plan Flexible work arrangement in a fully remote working environment Bi‑weekly work from home stipend Parental leave Tuition Reimbursement A culture of learning and development Komen provides a remote and/or home‑based working environment for all active employees. Komen defines remote as the ability to work from any physical location within the U.S. where an employee can perform specified work duties without disruption or distraction. Komen defines home‑based roles as positions that are required to reside in a specific market. Work schedules for both remote and home‑based are determined by the organizational needs of each department. Susan G. Komen is fair and equal in all its employment practices for people without regard to age, race, color, religion, gender, national origin, disability, veteran status, or sexual orientation. Additionally, we embrace diverse teams & perspective, and we find strength in the diversity of cultural backgrounds, ideas, and experiences. #J-18808-Ljbffr Susan G. Komen