Sign up to access all features of our service.
  • Job search
  • Favorites
  • Create a CV
    New
  • Salaries
  • Subscriptions

Senior Director, Rare Endocrinology and Rare Tumors Patient Services

Alexion Pharmaceuticals

This is what you will do: The Senior Director, Rare Endocrinology and Rare Tumors (RERT), Patient Services (PS) is responsible leading the Patient Services function for the RERT Business Unit, inclusive of driving the development and implementation of the PS strategy for four indications: Hypophosphatasia (HPP), Lysosomal Acid Lipase Deficiency (LAL-D), Neurofibromatosis Type 1 plus Plexiform Neurofibromas (NF1 PN) as well as potential future indications and assets. This critical leadership role will be responsible for working closely with the RERT Business Unit leadership to set the PS strategy, manage business performance, identify, and manage relationships with 3rd parties (e.g. specialty pharmacies) and identify opportunities to improve performance to better serve patients. This role will have responsibility for developing Patient Services strategy, and its execution via field-based teams, including a) the Case Management team, b) the Patient Education Manager team, and c) the Field Reimbursement Team. An essential element of success is a demonstrated ability to influence without authority and successfully negotiate and collaborate cross-functionally (e.g. marketing, market access, commercial operations, compliance, IT, legal, regulatory, training, medical, and field leadership). This leader is responsible for ensuring tight alignment with the business strategy to optimize opportunities to serve and educate patients in a compliant way. You will be responsible for: Leading and continuing to evolve the US PS best-in-class strategy and operating model for the US RERT business unit Overseeing the design of the Patient Services model for new launches and continuing to evolve existing indications’ models to ensure the team is using AI and technology to scale and enhance the patient experience Managing 3rd party vendor relationships to ensure achievement of KPIs and key business objectives as well as compliance and quality Partnering closely with Marketing, Market Access, Patient Advocacy, Legal, Compliance, Quality, Drug Safety, Commercial Operations, IT, Training, third parties and vendors to ensure that patient support programs and messaging are effectively meeting the needs of patients Recommending program design innovations and lead implementation plans to senior leadership, with rationale for design selection and financial impact. Work cross-functionally to design the Patient Services model for future launches Working closely with other members of Patient Services Leadership Team to drive department wide optimization Leading development of US strategic planning (3yr/1 yr.) for RERT PS, including tactical plans and budget allocation Working with Market Access, Commercial Operations and IT to ensure effective data flow with distribution partners to effectively manage the business Partnering with commercial insights to conduct innovative research/analytics to identify key business dynamics, behavioral barriers, segmentation, and barriers to initiation and adherence Establishing process for collection and sharing of best practices Always conducting work consistent with Astra Zeneca’s values: Put Patients First, Do the Right Thing, Play to Win, Be Entrepreneurial, and Follow the Science. Must make decisions consistent with Alexion, Astra Zeneca Rare Disease’s strong commitment to compliance and integrity, and respect for all laws, regulations, and company policies. You will need to have: Bachelor’s degree in a scientific or business field 15+ years related experience in the biotechnology industry Significant commercial experiences, with demonstrated success in patient services leadership positions preferred Ability to adapt in a rapidly evolving environment and with changing technology; bias toward proactively identifing problems and implement solutions; must have a learning mindset and strong personal accountability Proven, consistent history of high performance regardless of position or company Exceptional communication skills and ability to build strong cross-functional partnerships Understanding of compliance regulations and guidance governing copay and patient assistance programs, and commercial and government payer benefit interpretation Launch experience and/or experience in high growth areas High learning agility Prior experience managing people High level of interpersonal skills and highly adept in both verbal & written communication The duties of this role are generally conducted in an office environment. As is typical of an office-based role, employees must be able, with or without an accommodation to: use a computer; engage in communications via phone, video, and electronic messaging; engage in problem solving and non-linear thought, analysis, and dialogue; collaborate with others; maintain general availability during standard business hours. We would prefer for you to have: MBA preferred Broad base of experiences in patient services, field leadership, analytics, vendor management, marketing, market research, sales, and/or medical affairs is welcomed Rare disease/high-value biologics experience Date Posted09-Aug-2026Closing Date03-Sep-2026Our mission is to build an inclusive environment where equal employment opportunities are available to all applicants and employees. In furtherance of that mission, we welcome and consider applications from all qualified candidates, regardless of their protected characteristics. If you have a disability or special need that requires accommodation, please complete the corresponding section in the application form.SummaryLocation: US - Boston - MAType: Full time

Vacancy posted 2 days ago
Similar jobs that could be interesting for youBased on the Senior Director, Rare Endocrinology and Rare Tumors Patient Services in Boston, MA vacancy
  • $122.25k - $176.58k

    Job Title: Associate Director, Patient Support Services Analytics - Rare DiseaseLocation: Morristown, NJAbout the JobJoin the team transforming care for people with immune challenges, rare diseases, cancers, and neurological conditions. In Specialty Care, you'll help deliver... 
    Suggested
    Full time

    Sanofi

    Cambridge, MA
    2 days ago
  • $167k - $270k

     ...dedicated to improving the lives of patients with rare tumors. We developed and are commercializing...  ...looking for . Your Role: The Director, Value, Access & Pricing (VAP) is a...  ...sales, HEOR, medical affairs, patient services, and operations to ensure strategic alignment... 
    Suggested
    Temporary work
    Work at office
    Local area
    Remote work
    3 days per week

    SpringWorks Therapeutics

    Boston, MA
    11 days ago
  • $185.8k - $278.6k

     ...passionate about caring for our rich mix of people, customers, patients, and planet. That's why we are always looking for curious...  ...Health Economics & Outcomes Research (HEOR) specialist focusing in rare tumor, you'll generate rigorous medical evidence to support clinical... 
    Suggested
    Flexible hours

    Merck

    Boston, MA
    1 day ago
  • $143.6k - $215.4k

     ...2026-08-04EMD Serono, Inc. is seeking an Associate Director of US Medical Communications for Rare Tumors. This role involves leading communication strategies...  ...to healthcare professionals, ensuring alignment with patient care goals.The ideal candidate will have a scientific... 
    Suggested

    Merck

    Boston, MA
    1 day ago
  •  ...healthier world for our people, patients, and the planet. This is...  ...for the better. Chiesi Global Rare DiseasesChiesi Global Rare...  ...treatments and patient support services for rare and ultra-rare...  ...forThis is what you will doThe Senior Director, RWE is accountable for the... 
    Senior
    Hourly pay
    Work at office
    Local area
    Remote work
    Relocation package
    Flexible hours

    Chiesi

    Boston, MA
    1 day ago
  • $231.99k - $347.98k

    Position: Senior Director, Head of Rare Neurology Thought Leader LiaisonsLocation: Boston, MA (US Headquarters for Alexion) Hybrid: 3 days a week...  ...disease understanding, and an unrelenting commitment to patients. As part of AstraZeneca, we are uniquely positioned to accelerate... 
    Senior
    Full time
    Temporary work
    Local area
    Night shift
    3 days per week

    Alexion Pharmaceuticals

    Boston, MA
    1 day ago
  • $188.6k - $283k

     ...passionate about caring for our rich mix of people, customers, patients, and planet. That's why we are always looking for curious...  ...must be eligible to work in the US. Your Role:The Senior Counsel, Rare Tumors will provide comprehensive legal support to a Therapeutic... 
    Senior
    Flexible hours

    Merck

    Boston, MA
    3 days ago
  • $133.5k - $192.83k

    Job title: Associate Director, Project Management, Patient Support ServicesLocation: Cambridge...  ...need. Our Patient Support Services (PSS) team plays a key...  ...position will interact with senior leadership and subject...  ...people with immune challenges, rare diseases and blood... 
    Full time
    Work at office

    Sanofi

    Cambridge, MA
    1 day ago
  • $133.5k - $192.83k

    Job title: Associate Director, Change Management and Communication...  ...Delivery Office, Patient Support...  ...need. Our Patient Support Services (PSS) team plays a key...  ...with immune challenges, rare diseases and blood disorders...  ...objectives.Coordinate with senior leadership, HR, and... 
    Full time
    Work at office

    Sanofi

    Cambridge, MA
    3 days ago
  • $225k - $300k

    ## Director, Medical Affairs, Rare DiseaseApplylocations: Cambridge (US)time type: Full timeposted on: Posted Todayjob requisition id: R-21734**Title...  ...matters and endeavor every day to bring medicines to patients in 88 countries. We build a workplace that champions human... 
    Temporary work
    Local area
    Flexible hours

    Ipsen Group

    Cambridge, MA
    3 days ago
  •  ...thought leader on cross-functional Rare Disease strategy projects...  ...brand strategy and messaging, patient finding, market awareness and...  ...partnering with peers and other senior business leaders to develop...  ...access, market insights, patient services, sales management, etc.). ~... 
    Senior

    Jobtailor

    Cambridge, MA
    4 days ago
  • $206.25k - $343.75k

    Job title: US Senior Medical Director, Rare HematologyLocation: Cambridge, MA / Morristown, NJAbout the...  ...breakthrough treatments that bring hope to patients with some of the highest unmet needs....  ...Operations, and Patient and Product Services — while maintaining full compliance... 
    Senior
    Full time

    Sanofi

    Cambridge, MA
    6 hours ago
  • $183k - $252k

    About the RoleThe Global Associate Medical Director, Evidence Generation and Education is a key member of the Global Medical Rare Disease team, reporting into the Rare Disease...  ...Research, Value and Access, Regulatory, Patient Advocacy, Regional Medical, Commercial, publications... 
    Full time
    Temporary work
    Local area
    Worldwide

    Biogen Idec

    Cambridge, MA
    1 day ago
  •  ...professional to join our team as the Senior Director, Field Reimbursement. In this...  ...offices in optimizing patient access to Alexion products....  ...the Vice President, Patient Services & Strategy, this role is a high...  ...payers for specialty products (rare disease) across buy & bill... 
    Senior
    Full time
    Work at office

    Alexion Pharmaceuticals

    Boston, MA
    2 days ago
  • $263k - $292k

     ...of gene editing therapies to patients. The Company is leveraging its...  ...is seeking an experienced Senior Director, Biometrics to serve as the senior...  ...biometrics-related CROs and service providers.Provide active...  ...management practices especially in rare disease and/or gene and cell... 
    Senior
    Full time
    Temporary work
    Interim role

    Prime Medicine

    Cambridge, MA
    6 hours ago
  • Job title: Director, (Alpha-1 Antitrypsin Deficiency) AATD Patient Support Services Strategy and OperationsLocation: Cambridge, MA / Morristown, NJAbout the Job Across Rare Diseases, our "one team, common goals, single mission" go-to-market approach is leading the way.... 
    Work at office

    Sanofi

    Cambridge, MA
    2 days ago
  • $215k - $270k

     ...lives of people who live with a rare disease. Our edge comes from...  ...people and our commitment to patients. Our mission and culture...  ...Job Description The Senior Director, Launch Excellence will provide...  ...status, past or present military service, family medical history or... 
    Senior
    Temporary work

    Sobi

    Boston, MA
    24 days ago
  • $225k - $275k

     ...solutions. And we know that patients are counting on us to...  .... About You:The Director of Patient Access Liaisons...  ...partners closely with the Senior Director and cross-...  ...resources.Partner with Hub Services and case management...  ...required.Experience in rare disease and/or HAE strongly... 
    Full time

    Intellia Therapeutics

    Cambridge, MA
    3 days ago
  • $280.9k - $421.34k

     ...The Senior Medical Director Clinical Development will lead the clinical team for a high-visibility...  ...relationships with key investigators, sites, and patient partners. Experience operating at the...  ...and regulatory environment within rare or cardiometabolic diseases.... 
    Senior
    Full time
    Temporary work
    Work experience placement
    Work at office
    Flexible hours
    3 days per week

    Alexion Pharmaceuticals

    Boston, MA
    2 days ago
  •  ...treat a broad range of patients with unmet medical needs...  ...for driving a rare and serious condition called...  ...gastrointestinal stromal tumors (GIST), a type of cancer...  ...seeking an Associated Director of Patient Marketing to...  ...marketing and patient services, this leader will help... 
    Temporary work
    Work at office
    Local area
    Immediate start

    Cogent Biosciences

    Waltham, MA
    1 day ago
  • $245k - $300k

     ...and Facebook.Role Summary:The Senior Director, Epidemiology and Real World...  ...collaborators, consortia, and patient registriesStrengthens...  ...epidemiology, public health, health services research, or a related discipline...  ...engagementExperience in rare diseases and/or neuromuscular... 
    Senior
    Local area

    Dyne Therapeutics

    Waltham, MA
    4 days ago
  •  ...therapies to treat a broad range of patients with unmet medical needs....  ...is responsible for driving a rare and serious condition called...  ...gastrointestinal stromal tumors (GIST), a type of cancer with...  ...combination dosing. The Role: The Director/Senior Director of Biostatistics... 
    Senior
    Temporary work
    Interim role
    Work at office
    Local area
    Immediate start

    Cogent Biosciences

    Waltham, MA
    1 day ago
  • $252k - $378k

     ...Job DescriptionGeneral Summary:The Senior Director (non-MD) serves as a US Medical Affairs asset...  ...are aligned with corporate objectives, patient needs, and the evolving US treatment landscape...  ...in nephrology, immunology, or rare disease strongly preferred.Experience managing... 
    Senior
    Full time
    Summer work
    Remote work
    Flexible hours
    Shift work
    2 days per week

    Vertex Pharmaceuticals

    Boston, MA
    4 days ago
  •  ...for designing and building new organisms. Senior Director, Multiomics - Ginkgo DatapointsLevel (Sr...  ...rather than by hand. We're a fee-for-service partner — our customers own their data,...  ...current speed and cost. You possess the rare combination of deep scientific intuition... 
    Senior
    Full time
    Work at office

    Ginkgo Bioworks

    Boston, MA
    4 days ago
  • $252k - $378k

    ## Senior Director, US Medical Affairs – NephrologyApplylocations: Boston, MAtime type: Full timeposted...  ...are aligned with corporate objectives, patient needs, and the evolving US treatment...  ...in nephrology, immunology, or rare disease strongly preferred.* Experience... 
    Senior
    Summer work
    Remote work
    Flexible hours
    Shift work
    2 days per week

    Vertex Pharmaceuticals

    Boston, MA
    3 days ago
  •  ...muscular atrophy (SMA) and other rare, severe, and debilitating...  ...new possibilities for patients through its highly...  ...Summary of Position: The Senior Manager / Associate Director, HCP Marketing (US) will play...  ...Affairs, Market Access, Patient Services, Regulatory, Legal, and... 
    Senior

    Scholar Rock

    Cambridge, MA
    2 days ago
  • $89.9k - $250.4k

    The Assoc. Director, Solution Sales, Patient Access SupportServices sits in the Patient Access and Support Services (PASS) Center of Excellence. Working with a wide variety of pharmaceutical and MedTech clients, this is an individual contributor role that requires strong... 
    Full time
    Part time
    Immediate start
    Remote work
    Work from home
    Worldwide

    IQVIA

    Boston, MA
    1 day ago
  • $230k - $290k

     ...elevate the diagnostic laboratory’s role in improving patient health for more than 90 years. Our diagnostic...  ...Business System which makes everything possible.The Senior Director, United States Field Technical Service is responsible for the North American Field Service... 
    Senior
    Full time
    Remote work
    Work from home
    Flexible hours

    Danaher Corporation

    Boston, MA
    3 days ago
  • $155k - $225k

     ...vision of providing life-long cures to patients suffering from serious diseases.Position Overview:Beam is seeking a Senior Manager/Associate Director, Biostatistics to support the...  ...methods and clinical trial design for rare disease and/or gene/cell therapy clinical... 
    Senior
    Full time

    Beam Therapeutics

    Cambridge, MA
    1 day ago
  • $164.4k - $246.6k

    ## Associate Director, Patient Services TechnologyApplylocations: Boston, MAtime type: Full timeposted on: Posted Todayjob requisition id: REQ-29766 Job Description General Summary: The Business Engagement & Technology Associate Director will be a key technical resource... 
    Summer work
    Remote work
    Flexible hours
    2 days per week

    Vertex Pharmaceuticals LLC

    Boston, MA
    5 days ago

Do you want to receive more vacancies?

Subscribe and receive similar vacancies to Senior Director, Rare Endocrinology and Rare Tumors Patient Services. Be the first to apply!