Sr. Manager, Patient Advocacy & Engagement

Sr. Manager, Patient Advocacy & Engagement

Who we are:

At Agios, we are fueled by connections to transform rare diseases. We foster an inclusive, collaborative culture - one that sparks bold thinking and strengthens our connections with each other and with the rare disease communities we serve. We embrace diverse backgrounds with respect, active listening, and a commitment to inclusion - because our differences shape how we hire, collaborate, and innovate. Our team's proven track record of executional excellence, combined with our depth of expertise and dedication, enables us to develop innovative medicines that reflect the priorities of rare disease communities. Our commitment is more than scientific - it's deeply personal, grounded in the meaningful connections we have built. To learn more, visit and follow Agios on LinkedIn and X.

The impact you will make:

Agios Pharmaceuticals is searching for a dynamic Sr. Manager, Patient Advocacy & Engagement to join our growing team. We want someone who cares about this important work, and who's driven to connect to our mission of helping these patient communities. The Sr. Manager, Patient Advocacy & Engagement role is ideal for someone motivated to work within a passionate, innovative function that partners closely with patients to drive meaningful change.

The successful candidate will bring a strong blend of project management, strategic thinking and operational excellence. Reporting into and supporting the Associate Director, Strategy, Patient Advocacy & Engagement, this individual will play a key role in translating patient advocacy strategy into impactful materials and initiatives, ensuring consistent alignment between strategic objectives and execution.

Success in this position requires excellent communication and organizational skills, with the ability to thrive in a fast-paced environment. The ideal candidate will be a creative problem solver who can think strategically as well as execute effectively, building strong relationships with external stakeholders and cross-functional internal teams.

What you will do:

• Support the translation of patient advocacy strategy into execution, ensuring initiatives, materials, and activities are aligned with overarching objectives and deliver meaningful patient impact.
• Provide strategic, project management, and coordination support across key patient advocacy initiatives, working closely with Compliance and external vendors to ensure effective and compliant delivery.
• Support the planning and execution of patient advisory boards, including agenda development, logistics, and stakeholder coordination.
• Contribute to the development and management of patient-facing channels, including the Instagram and podcast initiatives, ensuring alignment with strategy and patient insights.
• Partner with Corporate Communications to support integrated internal and external initiatives, including disease awareness campaigns, social media, and patient-focused engagement activities.
• Support the delivery of patient advocacy activities at key conferences across PK deficiency, thalassemia, and sickle cell disease, including coordination of materials, approvals, and cross-functional inputs.
• Maintain a strategic view of the patient advocacy congress landscape, identifying high-impact opportunities and coordinating appropriate internal representation.
• Coordinate patient speaker engagements, ensuring alignment with broader objectives and supporting impactful integration of the patient voice across the organization.
• Build and sustain strong relationships with external stakeholders, including patient organizations, advocacy groups, and vendors, contributing to long-term partnership value and collaboration.
• Collaborate with operations to facilitate effective ways of working, including meeting coordination, action tracking, and innovative ways to incorporate AI into the work.

What you bring:

• Established project management and business operations skills
• Minimum 5 years' work experience, including 3+ years in the pharmaceutical or biotechnology industry
• Bachelor's degree or equivalent work experience
• Prior experience in patient advocacy is desirable but not essential; enthusiasm and passion for making a difference are most important
• Genuine interest in patient advocacy, with the ability to bring energy, sound judgement, and discretion to the role
• Positive, adaptable, and empathetic working style, with the ability to act with urgency in a complex environment
• Excellent communication, organizational, and prioritization skills, with the ability to manage competing deadlines and stakeholders
• Strong attention to detail, with experience managing documentation, systems, and workflows (e.g. SharePoint, databases, or portals)
• Strong problem-solving skills, with a proactive, solutions-oriented approach
• Proven ability to work collaboratively across cross-functional teams and with external partners
• Comfortable using approved AI tools to support organization, drafting, planning, and operational efficiency, in line with company policy and compliance requirements
• Strong interpersonal skills, with the ability to build trusted relationships with internal and external stakeholders
• Experience with Veeva and VisionTracker a plus

Concerned that you don't check off every box in the requirements listed above? Please apply anyway! At Agios, we value each other's differences and recognize that teams thrive when everyone brings their unique experiences to the table. We are dedicated to building an inclusive, diverse, equitable, and accessible environment where all employees can bring their whole selves to work. If you're excited about this role but your previous experience doesn't align perfectly with the job description, we still encourage you to apply. You may be just the right candidate for this role or another opening!

Work Location:

Location Agnostic: Work location for this role is based on employee's individual preference. This role has the ability to be either remote in the US or hybrid in our Cambridge Headquarters. Hybrid schedules vary but are generally less than 3 days per week onsite and hybrid employees are expected to live within commutable distance to our Cambridge Headquarters. Remote employees work entirely from home except for attending Company sponsored events/ meetings. For employees who choose to work remotely, travel may be required for certain company events commensurate to the above job description..

What we will give you:

• Deliberate Development. Your professional growth as one of our top priorities.
• We're all about individual needs. We embrace different perspectives, work styles, health and wellness approaches, care of families and productivity. When you're at your best, we're at our best.
• Premium benefits package. We invest in the health, wellbeing, and security of our people with a premium benefits package that is well-rounded and flexible to help meet the varied personal and professional needs of every member of our team. For more detail on the benefits we offer at Agios, visit the Inside Agios section of our website.
• Competitive and equitable performance-based compensation. This includes base salary and both short- and long-term incentives that are connected to our business strategy and vary based on individual and company performance.
• The current base salary range for this position is expected to be between $131,035 and $196,553 annualized; final salary will be determined based on various factors including, but not limited to, years of relevant experience, job knowledge, skills and proficiency, degree/education, and internal comparators.
• Psychological safety. We support an environment of fearlessness. We want you to share your ideas, speak candidly and take data-informed risks to help push the boundaries.
• Commitment to diversity. We strive to foster a welcoming workplace where everyone can thrive. We're continuously looking to improve the inclusivity of our workforce.
• Commitment to community. We're an active participant in the communities that surround us - the communities where we live, and the community of people and their loved ones in need of better treatment options for conditions that are often overlooked.

Interested in learning more about what makes our culture unique? Visit the Inside Agios section of our website.