Longitudinal Health Records Study - Contribute Your De-Identified Health Data

Job Overview
This initiative centers on developing a robust longitudinal health data ecosystem that consolidates years of participant medical information from clinical healthcare systems across the United States. The project captures a wide range of healthcare documentation including laboratory results, vital signs, pathology reports, imaging summaries, and clinical notes — all sourced directly from participants’ personal MyChart patient portal accounts.

The project involves participant-driven data acquisition. Participants will be required to export their personal health records directly from their MyChart account as an XML file and securely upload these files into our data collection platform. MyChart is the official patient portal used by hospitals and clinics across the United States, and the export process takes approximately 15–20 minutes on a smartphone and computer. Before submission, participants must review and confirm the accuracy of automated PHI redaction to ensure that all sensitive identifiers have been properly removed.

Purpose of the Project
The resulting dataset supports advanced analytics, population health research, predictive modeling, and the development of data-driven tools that enhance clinical decision-making and long-term health insights. The goal is to create an off-the-shelf (OTS) product that can be deployed broadly across health research and clinical innovation environments and offered to different clients.

Main Requirements
• Timeline: 5 weeks
• Collect 500 health records from healthcare systems in the US
• Goal breakdown:
• 400 general health records
• 50 health records from participants with a cancer condition
• 50 health records from participants with a diabetes condition

Participant Requirements
• Must have an active MyChart account with an existing health history
• Must be able to export their health record as an XML file from the MyChart app
• Must have access to both a smartphone (to export from MyChart) and a computer (to upload the file)
• Must be willing to review automated PHI redactions before final submission
• One submission per participant

Compensation
• Records spanning less than 5 years of health history: $60
• Records spanning 5–10 years of health history: $100
• Records spanning more than 10 years, or records from participants with a cancer or diabetes condition: $150