Remote Senior Research Associate — Rare Diseases Registry
Rare Disorders, Inc.
Brooklyn, NY
- Remote job
NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD) invites a Senior Research Assistant to support IAMRARE Registry programs, enabling patient advocacy groups to collect critical data to improve care and therapies for rare diseases. You will collaborate with the Research Team to expand registry capabilities and train partners. You will lead onboarding, review study documents, build surveys, conduct QA, and coordinate schedules for workshops and meetings, while preparing periodic program reports. #J-18808-Ljbffr Rare Disorders, Inc.
Vacancy posted 1 day ago
Similar jobs that could be interesting for youBased on the Remote Senior Research Associate — Rare Diseases Registry in Brooklyn, NY vacancy
- ...seeking a seasoned Clinical Research Associate (CRA) to support site... ...therapeutic areas, including Rare Diseases and Oncology. You will collaborate... .... The role emphasizes remote site oversight, travel regionally... ..., and a clear path to more senior clinical operations...Remote workSeniorWorldwide
- ...Responsible for managing the research activities at sites... ...site management is performed remotely, you will be required to ensure... ...experience as a Clinical Research Associate. 4‑year university degree or... ...is required; Psychiatry and Rare Disease are strongly preferred....Remote jobSeniorWork at officeWorldwide
- CVS Health Corporation is seeking a Senior Manager (Pharmacist) to lead oncology and rare disease product initiatives from a remote location in the USA. You will build strategic roadmaps, oversee clinical workflows, and partner with cross-functional teams to deliver high...Remote workSenior
- CVS Health is seeking a senior product innovator to drive payor-focused oncology, rare disease and high-cost therapy programs. You will build a robust product roadmap... ...functions to deliver market-leading solutions. This remote, full-time role requires 5+ years of healthcare...Remote jobSeniorFull time
- Initial Therapeutics, Inc. is seeking a Senior Medical Science Liaison for Rare Diseases in Northern California. This field-based role involves engagement with Opinion Leaders and healthcare providers to improve patient outcomes and execute medical strategies. The ideal...Remote jobSeniorFlexible hours
$160k - $175k
...Kentucky to lead sales and marketing activities in specialty biologics. This position requires at least 8 years of experience in rare disease sales. The ideal candidate should have strong interpersonal and communication skills, and the ability to build relationships...Remote jobSenior- Worldwide Clinical Trials is seeking a Clinical Research Associate to manage site activities across therapeutic areas including CNS/Neurology and Rare Diseases. The role emphasizes regulatory support, site initiation visits, and data integrity across global studies. You...Remote jobSeniorWorldwide
- ...biotechnology company is seeking a Medical Science Liaison/Senior Medical Science Liaison focused on rare diseases in Chicago. This role involves KOL development,... ...degree and relevant industry experience. This remote-based position may require up to 70% travel, including...Remote jobSeniorNight shift
- Biocodex is seeking an Associate Director for their Medical Affairs team focusing on rare diseases. The role is primarily remote and emphasizes building relationships with specialists in pediatric neurology and epilepsy within the Southeastern United States. Candidates...Remote jobSenior
- Worldwide Clinical Trials in Texas (Remote) is seeking a Senior Clinical Research Associate to manage oncology and rare disease trials across the United States. You will monitor sites, support regulatory processes, and ensure data quality while working remotely with regional...Remote jobSeniorWorldwide
- ...Chiesi is an international research-focused biopharmaceutical... ...better. Chiesi Global Rare DiseasesChiesi Global Rare Diseases is a Chiesi Group’s business... ...region functions and Senior Director or Reg CMC Lead,... ...flexible working arrangements, remote work options, and tax...Remote workSeniorHourly payWork at officeLocal areaRelocation packageFlexible hours
- ...answers that help healthcare providers, patients, researchers, pharmaceutical companies and health systems... ...and improving lives.Labcorp is seeking a remote Senior Director, Market Access (Diagnostics -Pediatric and Rare Diseases, Genetics & Specialty Testing) to join our...Remote workSeniorTemporary workCasual workInternshipFlexible hours
$97k - $193k
Position Overview Clinical Research Associate (CRA) - Worldwide Clinical TrialsAs a CRA, you will... ..., Neuroscience, Oncology, and Rare Diseases. Responsibilities Manage research activities... ...regulatory documentation. Collaborate remotely and communicate regularly with line managers...Remote workSeniorWork at officeWorldwide$97k - $193k
...the world’s most persistent diseases is not paved by those who play... ...of patients. As a Clinical Research Associate (CRA) at Worldwide, you will... ...Neuroscience, Oncology, and Rare Diseases. Collaboration with... ...efforts will be performed remotely, you will be required to ensure...Remote workSeniorHourly payWork at officeWorldwide$130k - $160k
...hypertension linked to interstitial lung disease (PH‑ILD), and a rare pediatric cancer. Our near‑term... ...environment Minimum Requirements for Senior Cardiopulmonary‑PAH (CPS) Specialist... ...Location & Travel This position is located remotely within the San Francisco, CA area...Remote workSeniorLocal area- ...Senior Medical Science Liaison, Rare Disease - Northern California Territory to include Northern California (... ...impact on the lives of patients as we research, manufacture, and deliver... ...Flexible work models, including remote and hybrid work arrangements, where...Remote workSeniorFlexible hours
$130k - $180k
United Therapeutics in Cincinnati, OH, is seeking an Senior/Advanced Lung Disease Sales Specialist to expand Tyvaso adoption through physician relationships and key accounts. This remote-eligible role supports a 75-80% travel expectation across the territory, with salary...Remote jobSenior$153.54k - $230.31k
Medical Science Liaison / Senior Medical Science Liaison, Rare Diseases (Chicago) At Agios, we are fueled by connections... ...of relevant hematology clinical/research/industry experience in a clinic... ...Location Specific - Field/Remote: This is a remote‑based field position...Remote workSeniorTemporary workLocal areaFlexible hoursNight shift- A leading biotechnology company is seeking a Sr. Medical Science Liaison focusing on Rare Diseases. Responsibilities include networking with medical experts, communicating scientific information, and collaborating with various teams. Ideal candidates should hold a doctorate...Remote jobSeniorFlexible hours
- ...world’s toughest diseases. With our focus on... ...General Medicine, and Rare Disease we reach... ...of patients as we research, manufacture, and... ...CD&A - Forecasting Senior Manager, Global... ...management experience Associate’s degree and 10... ...models, including remote work arrangements,...Remote workSeniorWork at officeWorldwideFlexible hours
- ...Project Manager Seeking a candidate with global trial management experience in either Ophthalmology, Psychiatric, or Neurological Rare Diseases. Please demonstrate this experience in your submittal. Join Us as a Project Manager - Make an Impact at the Forefront of...Remote workSeniorContract workWork at office
Thermo Fisher
United States1 day ago $50k - $60k
...application process. Senior Research Assistant Full Time Professional... ...Organization for Rare Disorders (NORD) is... ...serving the rare disease community in the United... ...and expand the IAMRARE Registry Program, which enables... ...This position is fully remote. Candidates must be able...Remote workSeniorFull timeWork at officeHome office$172.34k - $233.17k
...against the world’s toughest diseases. With our focus on four... ...General Medicine, and Rare Disease- we reach... ...lives of patients as we research, manufacture, and deliver... ...feedback to the senior leadership team on specific... ...work models, including remote and hybrid work arrangements...Remote workSeniorFull timeWork at officeFlexible hours$130k - $160k
...Advanced Lung Disease Specialist We are the first publicly-traded... ...to develop treatments for rare, deadly diseases. We were founded... ...PAH, pulmonary hypertension associated with interstitial lung... ...Travel This position is located remotely within the Cincinnati, OH area...Remote workSeniorLocal area- ...Medical Science Liaison, IgG4 - Rare Disease (IN, KY, OH WV) Join Amgen's... ...with key investigators and researchers. In conjunction with... ...areas and provide feedback to senior leadership on competitors’ initiatives... ...work models, including remote and hybrid where possible...Remote workSeniorWork at officeFlexible hours
- ...experienced biostatistician to provide statistical leadership for rare-disease programs from Phase 1/2 to PoC readiness, with a focus on... ...adaptive approaches, and collaboration with Clinical Development and CROs. The role is remote in the U.S. #J-18808-Ljbffr GondolaBioRemote jobSenior
- Angitia Biopharmaceuticals is seeking a Medical Director or Senior Medical Director to lead global clinical development for rare musculoskeletal diseases. The role blends strategic leadership with hands-on study execution, medical monitoring, and cross-functional team leadership...Remote jobSenior
- CVS Health is seeking a remote, senior product leader to drive growth in Specialty by building innovative payor‑focused oncology and high‑cost therapy solutions. You will shape cost management, formulary strategies, and care programs, working closely with Clinical, Operations...Remote jobSenior
$165k - $179k
Amylyx Pharmaceuticals, Inc. is seeking a Senior Product Manager, Patient Marketing to drive PBH patient education and engagement across... ...while ensuring compliant, impactful patient experiences. This remote-friendly US role requires occasional travel to Cambridge, MA and...Remote jobSenior- ...mechanism of action and emerging data. The role focuses on education, clinical trial support, and medical insights to inform internal teams. Expect 60-70% travel, remote-friendly structure, and alignment with core company values. #J-18808-Ljbffr Alnylam Pharmaceuticals, Inc.Remote jobSenior
Do you want to receive more vacancies?
Subscribe and receive similar vacancies to Remote Senior Research Associate — Rare Diseases Registry. Be the first to apply!
Related searches
- art history research assistant Brooklyn, NY
- biochemistry research assistant Brooklyn, NY
- part time research assistant Brooklyn, NY
- research fellow dermatology Brooklyn, NY
- research associate in biology Brooklyn, NY
- graduate research assistant Brooklyn, NY
- research administrator Brooklyn, NY
- social science research assistant Brooklyn, NY
- research assistant Brooklyn, NY
- research associate scientist Brooklyn, NY