Director, PSS Rare Disease Data Strategy, Architecture and Governance

Job title: Director, PSS Rare Disease Data Strategy, Architecture and GovernanceLocation: Morristown, NJAbout the Job Sanofi's Rare Disease Patient Support Services (PSS) organization operates at the intersection of clinical complexity, patient intimacy, and data intensity unlike any other therapeutic area in the enterprise. This is a transformational, leadership position serving as the single point of end-to-end accountability for how PSS data is structured, governed, protected, and converted into meaningful insights, automated actions, and improved outcomes across both the post-enrollment, prescription and patient journeys.PSS Rare Disease is the only therapeutic area with patient-specific ordering and infusions and direct data input into the Sanofi iCare+ CRM. The data landscape spans 15+ specialized datasets, complex specialty pharmacy integrations, longitudinal rare disease patient management, and hundreds of data points that — only when properly structured — become the engine behind automated workflows, PSS interventions, HCP portals, and performance management solutions.This role is not a policy-defining function alone. It is a technical implementation role that co-designs, enforces, and continuously evolves the data foundation PSS depends on. The Director must be deeply technical enough to challenge IT norms while remaining business-aligned and influential enough to prioritize value — serving as a co-designer and decision-maker, not a requestor, in all data-related discussions.Join the team transforming care for people with immune challenges, rare diseases, cancers, and neurological conditions. In Specialty Care, you'll help deliver breakthrough treatments that bring hope to patients with some of the highest unmet needs.About Sanofi We're an R&D-driven, AI-powered biopharma company committed to improving people's lives and delivering compelling growth. Our deep understanding of the immune system — and innovative pipeline — enables us to invent medicines and vaccines that treat and protect millions of people around the world. Together, we chase the miracles of science to improve people's lives.Main ResponsibilitiesDigital & Data Strategy LeadershipOwn the PSS perspective on the Digital roadmap and align all data-producing digital initiatives with PSS business objectivesBridge the enterprise teams of Digital/IT, US Data Management, Product Services and PSS Operations, ensuring PSS requirements are prioritizedProvide strategic oversight of core data platforms and emerging technologiesAs the primary liaison, represent PSS data interests to PSS business stakeholders, IT/Digital, Risk/Compliance groups, and in enterprise governance forumsData Architecture & Platform IntegrationDesign and own the PSS perspective on end-to-end PSS data architecture spanning core data platforms, SP systems, data mesh, and integrated enterprise analytics environments to achieve maximum interoperabilityDefine how data is structured across the prescription, buy-and-bill, and hub patient journeyArchitect, document and represent to non-technical audiences how hundreds of data points — status updates, denial codes, missing information flags, transaction messages — are integrated for maximum utility to facilitate insights, automation, and actionDefine integration patterns with IT/Digital including APIs, data pipelines, and controlled data sharing zonesManage and evolve growing datasets including EHR, evolving digital ecosystem partners, and specialty pharmacy or distributor dataEnsure data flows support real-time and near-real-time PSS operational needsData Stewardship & QualityDefend the standards of existing infrastructure and actively assess and plan for the integration of new brand launches, data sources, or processesDefine and maintain the meaning, context, and intended use of all PSS data elements; own the data catalog and ensure full data lineage to support auditsDesign, implement, and enforce data quality rules and validation standards across all PSS data sources — including 15+ core datasets and all incoming vendor feeds from SPs, hub platforms, payer systems, and other partnersGovernance, Access & ComplianceDrive and safeguard infrastructure change management by implementing and auditing data, process, and infrastructure changesCollaborate with US Data Privacy to define data classification standards (PHI, non-PHI, sensitive, restricted) across all PSS data domains; design and enforce data access policy and use models including consent management and data retentionEnsure the sufficiency of data and architectural safeguards to assure full HIPAA compliance and other regulatory frameworks in both policy and technical implementation for both structured and agentic AI modes of accessEvaluate data and business improvement opportunities with new data acquisitions and prevent data redundancyAbout YouRequired QualificationsBachelor's degree required; advanced degree in Information Management, Computer Science, Health Informatics, Data Science, or related field preferred7–10+ years of experience in data architecture, data governance, or data engineering; at least 3–5 years in healthcare, pharmaceutical, or patient servicesDemonstrated experience with PHI (protected health information), patient privacy regulations, and healthcare data complianceProven track record designing and implementing data governance frameworks in complex, multi-platform environmentsExperience in or closely with Patient Support Services, specialty pharmacy, or hub services strongly preferredSenior leadership experience in matrixed, enterprise organizationsTechnical SkillsData Architecture & Modeling: Relational, data mesh and data lake architectures with command of common data modeling softwarePlatform Expertise: Snowflake, Salesforce Health Cloud or equivalent database & patient support platforms, SP data integration, enterprise data pipelinesIntegration Patterns: API design, ETL/ELT pipelines, event streaming, controlled data sharingData Governance Tooling: Data catalog tools, metadata management, lineage tracking, data quality platformsAccess & Security: RBAC, ABAC, data masking, encryption standardsAnalytics Enablement: BI dashboards, self-service analytics, AI/ML model inputs, automated workflow triggersCompliance Frameworks: HIPAA, PHI handling, consent management, data retention standardsBusiness AcumenDeep understanding of buy-and-bill product acquisition and the prescription pre/post-Rx journey: specialty drug access, prior authorization, utilization management, denial/appeal workflows, triage to fill, SP fulfillment, and adherence monitoringSome understanding of the patient services journey within rare disease managementAbility to communicate complex data concepts to non-technical stakeholders and senior leadership and influence outcomesStrong prioritization skills balancing business, IT, compliance, and external partner demandsWhy Choose UsBring the miracles of science to life alongside a supportive, future-focused team. Discover endless opportunities to grow your talent and drive your career, whether it’s through a promotion or lateral move, at home or internationally. Enjoy a thoughtful, well-crafted rewards package that recognizes your contribution and amplifies your impact. Take good care of yourself and your family, with a wide range of health and wellbeing benefits including high-quality healthcare, prevention and wellness programs and at least 14 weeks’ gender-neutral parental leaveSanofi Inc. and its U.S. affiliates are Equal Opportunity and Affirmative Action employers committed to a culturally diverse workforce. All qualified applicants will receive consideration for employment without regard to race; color; creed; religion; national origin; age; ancestry; nationality; marital, domestic partnership or civil union status; sex, gender, gender identity or expression; affectional or sexual orientation; disability; veteran or military status or liability for military status; domestic violence victim status; atypical cellular or blood trait; genetic information (including the refusal to submit to genetic testing) or any other characteristic protected by law.#GD-SG #LI-GZ #LI-Hybrid#vhdPursue progress, discover extraordinaryBetter is out there. Better medications, better outcomes, better science. But progress doesn’t happen without people – people from different backgrounds, in different locations, doing different roles, all united by one thing: a desire to make miracles happen. So, let’s be those people.At Sanofi, we provide equal opportunities to all regardless of race, colour, ancestry, religion, sex, national origin, sexual orientation, age, citizenship, marital status, ability or gender identity.Watch our ALL IN video and check out our Diversity Equity and Inclusion actions at sanofi.com!US and Puerto Rico Residents OnlySanofi Inc. and its U.S. affiliates are Equal Opportunity and Affirmative Action employers committed to a culturally inclusive and diverse workforce. All qualified applicants will receive consideration for employment without regard to race; color; creed; religion; national origin; age; ancestry; nationality; natural or protective hairstyles; marital, domestic partnership or civil union status; sex, gender, gender identity or expression; affectional or sexual orientation; disability; veteran or military status or liability for military status; domestic violence victim status; atypical cellular or blood trait; genetic information (including the refusal to submit to genetic testing) or any other characteristic protected by law.North America Applicants OnlyThe salary range for this position is:$178,500.00 - $257,833.33All compensation will be determined commensurate with demonstrated experience. Employees may be eligible to participate in Company employee benefit programs. Additional benefits information can be found through the LINK.SummaryLocation: Morristown, NJ; Cambridge, MAType: Full time