Associate Director, Patient Advocacy & Engagement (Eastern United States) Alnylam

Candidates must reside in the Eastern United States and ideally Boston The Associate Director, Patient Advocacy and Engagement, Rare and Pipeline will play a critical role in driving patient-centric strategies and strengthening relationships with patient advocacy organizations primarily in US. Reporting to the Sr. Director, Global Patient Advocacy Rare and Pipeline . The role will ensure alignment of patient advocacy efforts with the broader Global Rare Medical Affairs and clinical development program strategies. The role will require a dynamic leader with strong interpersonal skills and a deep understanding of rare diseases, patient advocacy, and cross-functional collaboration. Key Responsibilities Strategic Leadership and Collaboration Develop and execute the US patient advocacy strategy for the rare and pipeline portfolio, ensuring alignment with the medical and clinical program strategy. Partner with internal stakeholders, including Medical Affairs, Commercial, Market Access, and Public Affairs teams, to ensure a unified approach to patient advocacy efforts. Develop strategic collaborations between internal and external stakeholders in line with mutual goals to enhance care for patients. Enable patient input and engagement into regulatory and market access submissions. Lead the implementation of advocacy programs that are culturally and regionally appropriate, ensuring a positive impact at the national and local levels. Support Alnylam’s patient-focused culture collaborating closely with legal, compliance, and data privacy colleagues to ensure strict adherence to local codes and company policies. Patient Advocacy Engagement Serve as the primary point of contact for national, regional, and local patient advocacy groups, fostering trusted relationships that support mutual goals. Provide support as needed with international patient advocacy groups. Identify and address unmet patient needs by facilitating programs, initiatives, and collaborations that enhance disease awareness, patient education, and access to treatment. Develop initiatives to enhance disease awareness and improve time to diagnosis, as well as educate the patient community so that they are empowered to actively engage with their healthcare provider in the management of their disease. Represent the organization at patient advocacy events, including conferences, meetings, and community forums, to strengthen external relationships. Cross-Functional Partnership Work closely with Commercial teams to ensure patient-centricity is integrated into brand and market access strategies. Partner with Medical Science Liaisons (MSLs) and other field teams to gather insights and facilitate interactions between patient advocacy groups and key stakeholders. Collaborate with the Public Affairs and Communication teams to align advocacy initiatives with policy and communication strategies. Enhance understanding of the patient, caregiver, and associated communities across the Alnylam stakeholders to support strategic decision making that reflects the needs of the community. Provides support for other programs as required. Program Development and Execution Lead the development of patient education materials, advocacy resources, and engagement plans in partnership with internal and external stakeholders. Monitor and evaluate the impact of patient advocacy initiatives, ensuring continuous improvement and alignment with organizational goals. Compliance and Governance Ensure all patient advocacy activities comply with regulatory, legal, and ethical standards. Serve as a trusted advisor on patient advocacy-related matters, providing guidance to internal teams on compliance best practices. Qualifications Education: Advanced degree in life sciences, public health, or a related field preferred (PhD, PharmD, MD, or MBA a plus). Ability to travel approximately 30% of the time. Experience Solid experience in biotech and pharmaceutical industry. 3+ years of experience in patient advocacy, preferably in the biopharmaceutical industry. Proven expertise in rare diseases or conditions relevant to primary hyperoxaluria and acute hepatic porphyria is strongly preferred. Renal and cardiac experience would be welcomed. Experience leading high-impact patient engagement programs at the national or regional level. Skills and Competencies Exceptional relationship-building skills with the ability to influence and collaborate across internal and external stakeholders. Strong understanding of the patient advocacy landscape, particularly in rare diseases. Strategic mindset with the ability to translate complex strategies into actionable plans. Proven ability to manage budgets and thrive within compliance operations frameworks. Excellent communication, presentation, and organizational skills. Key Success Factors Passionate advocate for patients and caregivers, demonstrating empathy and a commitment to improving the patient experience. Collaborative team player with a proactive, solutions-oriented mindset. Strong business acumen, with the ability to balance patient needs with organizational goals. Ability to thrive in a fast-paced, network operating or matrix environment; able to prioritize high-impact projects; works with a sense of purpose and able to roll up their sleeves and execute. About Alnylam: Alnylam Pharmaceuticals (Nasdaq: ALNY) has led the translation of RNA interference (RNAi) into a whole new class of innovative medicines with the potential to transform the lives of people afflicted with rare and more prevalent diseases. Based on Nobel Prize-winning science, RNAi therapeutics represent a powerful, clinically validated approach to treating diseases at their genetic source by “interfering” with mRNA that cause or contribute to disease. Since our founding in 2002, Alnylam has led the RNAi Revolution and continues to turn scientific possibility into reality. Our culture: Our people-first culture is guided by our core values: fiercely innovative, open culture, purposeful urgency, passion for excellence, and commitment to people, and these values influence how we work and the business decisions we make. Thanks to feedback from our employees over the years, we’ve been fortunate to be named a top employer around the world. Alnylam is extremely proud to have been recognized as the #1 Large Employer by Boston Globe Top Places to Work in 2023 for the third consecutive year, one of Science Magazine’s Top Biopharma Employers, one of America’s Most Responsible Companies for 2024 by Newsweek, a Fast Company Best Workplace for Innovators, and a Great Place to Work in Canada, France, Italy, Spain, Switzerland, and UK – among others. At Alnylam, we commit to an inclusive recruitment process and equal employment opportunity. We are dedicated to building an environment where employees can feel that they belong, can bring their authentic selves to work, and achieve to their full potential. By empowering employees to embrace their unique differences at work, our business grows stronger with advanced and original thinking, allowing us to bring groundbreaking medicines to patients. Qualified applicants will receive consideration for employment without regard to their race, color, religion, age, sex, sexual orientation, gender identity or expression, national origin, ethnicity, marital status, protected veteran status, disability, or any other characteristics prohibited by law. #J-18808-Ljbffr Civic Science Media Lab