Senior Director, Rare Disease Patient Advocacy & Engagement
Egetis Therapeutics
Egetis Therapeutics is expanding its US patient advocacy and engagement efforts for the MCT8 deficiency program. The Senior Director will lead strategy, build trust with patients, caregivers and advocacy groups, and work across Medical Affairs, Commercial, Market Access and Clinical Development to ensure patient perspectives shape development, launch plans and access initiatives. The role emphasizes strategic planning, ethical collaborations, and strong executive communication to drive disease #J-18808-Ljbffr Egetis Therapeutics
- Join us in helping patients with rare diseases. At Egetis Therapeutics we challenge the status quo for the benefit of those... ...with external partners. Position Overview The Senior Director, Patient Advocacy & Engagement will design and lead Egetis’ US advocacy strategy...Senior
- A biopharmaceutical company seeks an Associate Director for Patient Advocacy and Engagement. This role involves strategic leadership in patient advocacy, engaging with advocacy groups, and developing educational initiatives. The ideal candidate has an advanced degree,...Suggested
- Chiesi USA, Inc. in Boston seeks a Sr. Manager, Patient Advocacy for the Global Rare Diseases unit. Reporting to the Head Patient Advocacy, you will develop... ...patient groups to inform decision-making. You will engage stakeholders, champion the patient voice in strategy meetings...Senior
- ...what you will do: The Senior Director, Rare Endocrinology and Rare Tumors (RERT), Patient Services (PS) is responsible... ...Access, Patient Advocacy, Legal, Compliance, Quality... ..., Astra Zeneca Rare Disease’s strong commitment to... ...to: use a computer; engage in communications via...SeniorFull timeWork at office
$240k - $275k
Description of Role The Senior Director of Patient Advocacy will lead the development and... ...'s patient advocacy and engagement strategy, ensuring the patient... ..., corporate strategy, disease awareness, and future commercialization... ..., patient leaders, and rare disease communities....SeniorFull time- ...ApplicationsEmail: ****@*****.*** Associate Director, Patient Advocacy and Engagement, Rare and Pipeline will play a critical role in driving... ...skills and a deep understanding of rare diseases, patient advocacy, and cross-functional collaboration...Local area
- ...healthier world for our people, patients, and the planet. This is... ...better. Chiesi Global Rare DiseasesChiesi Global Rare Diseases is a Chiesi Group’s... ...scientific research, patient advocacy and care. Discover more... ...implement plans to directly engage US and Canadian patient...SeniorHourly payLocal areaRemote workRelocation packageFlexible hours
$152.6k - $283.4k
...HybridHelp shape the patient and caregiver... ...). As the Associate Director, Patient Marketing Strategy... ...that support disease awareness, engagement, and launch readiness... ...patient, caregiver, and advocacy insights into meaningful... ...with either rare disease, specialty,...Full timeLocal areaRemote workRelocationShift work$210k - $300k
...transforming the lives of patients living with rare neuroendocrine diseases. We develop medicines... ...begin their journey of advocacy to find the answers... ...OverviewRhythm is seeking a Senior Director, Biostatistics to join... ...biostatistics by engaging in broader clinical, regulatory...SeniorInterim roleWork at officeFlexible hoursShift work$225k - $300k
## Director, Medical Affairs, Rare DiseaseApplylocations: Cambridge (US)time type: Full... ..., Medical Affairs, Rare Disease**Company:**Ipsen... ...day to bring medicines to patients in 88 countries. We build... ...relating to compliant medical engagements* Proven ability to work in...Temporary workLocal areaFlexible hours- ...Job Title: Associate Director, Patient Support Services Analytics - Rare Disease Location: Morristown, NJ About the Job Join the team transforming care for people with immune challenges, rare diseases, cancers, and neurological conditions. In Specialty Care, you'll help...
$122.25k - $176.58k
...Job Title: Associate Director, Patient Support Services Analytics - Rare Disease Location: Morristown, NJ About the Job Join the team transforming care for people with immune challenges, rare diseases, cancers, and neurological conditions. In Specialty Care, you'll help...$183k - $252k
...RoleThe Global Associate Medical Director, Evidence Generation and... ...of the Global Medical Rare Disease team, reporting into the Rare... ...Value and Access, Regulatory, Patient Advocacy, Regional Medical,... ...meetings, and external expert engagements by preparing materials, coordinating...Full timeTemporary workLocal areaWorldwide$234k - $322k
About This RoleThe Senior Director, Marketing, Rare Disease - Friedreich Ataxia (FA) will be a critical role and visible leader within... ...to Business Intelligence and Operations, Patient Services, Market Access, Medical, Advocacy, Market Research, Forecasting, Analytics,...SeniorFull timeTemporary workLocal area$238k - $327k
About This RoleAs the Senior Director, Head of Global Pricing and Access (V&A) for Alzheimer’s Disease, you will be at the forefront of Biogen... ...role involves leading V&A engagement with external stakeholders... ..., ensuring they reach patients effectively and sustainably....SeniorFull timeTemporary workLocal areaWorldwide$135k - $165k
...efficiently to the patients that need them... ...Regulatory and Patient Engagement within Raven.... ...the Associate Director of Patient Recruitment... ...campaigns to advocacy relationships, patient... ...tools. Where the senior members of the... ...: Experience in Rare Disease, Oncology, or Neurology...SeniorWork at office$165k - $179k
Amylyx Pharmaceuticals, Inc. is seeking a Senior Product Manager, Patient Marketing to drive PBH patient education and engagement across channels ahead of launch. You will translate... ...programs, partner with Medical Affairs, Advocacy, and Commercial teams, and manage cross-...SeniorRemote job$115k - $215k
...potential to dramatically improve patients’ lives. Kymera is deploying TPD to address disease targets and pathways... ...seeking an experienced Manager or Senior Manager of Patient Recruitment and... ...ensuring the successful enrollment and engagement of patients in our trials,...SeniorLocal area$150k - $225k
...hidden biological mechanisms of disease through the convergence of multiomic patient data, high-performance computing,... ...centers, data partners, and patient advocacy organizations globally. To learn... ...skills with the ability to engage confidently with a variety of stakeholders...SeniorFull timeContract workPart timeWork at officeLocal area$143.25k - $210k
Associate Director, Operations, Rare Disease Business Unit Company: Ipsen Biopharmaceuticals Inc. About Ipsen... ...every day to bring medicines to patients in 88 countries. We build a... ...Leader Liaisons (TLLs) to enhance field engagement, drive cross-functional execution,...Temporary workHome officeFlexible hours$206.25k - $297.92k
Job title: Senior Director, Global HEVA Neurology, Early and... ...unwavering dedication to patients, we can achieve... ...humanity’s identity. When disease disrupts self-identity... ...with immune challenges, rare diseases, cancers, and... ...useStakeholder Engagement and External PartnershipsBuild...SeniorFull timeWork at officeWorldwide$262.4k - $393.6k
...Job DescriptionRole OverviewThe Sr. Director, Commercial Technology Business Engagement Leader – Kidney & Patient Services is responsible for executing and operationalizing... ...progressive technology experience, including senior delivery or domain leadership roles.5+ years...SeniorFull timeSummer workRemote workFlexible hours2 days per week- Sanofi Inc. is seeking an Associate Director, Patient Support Services Analytics - Rare Disease in Morristown, NJ. You will drive comprehensive analytics to inform Rare Disease programs and partner with Commercial and PSS stakeholders to translate data into actionable insights...
$277k - $317k
...transform the lives of patients by establishing a... ...medicines that engage intracellular... ...inherited retinal diseases, among others.... ...development and rare diseases and are... ...The OpportunityThe Senior Director, National Field Medical... ..., Patient Advocacy, and Corporate Affairs...SeniorWork at officeLocal areaRemote work- ...Biopharmaceuticals Inc. in Cambridge, MA seeks an Associate Director of HCP Marketing for the Bylvay brand to drive U.S. rare disease marketing initiatives and support the ongoing... ...syndrome. The role focuses on multichannel engagement, advisory boards, and KPIs with cross-...Senior
$182k - $275k
...transforming the lives of patients living with rare neuroendocrine diseases. We develop medicines... ...begin their journey of advocacy to find the answers they... ...Opportunity OverviewThe Director of Benefits leads the strategy... ...experience and clear, engaging communication at every...Work at office$160k - $215k
...clinical research to transform patient outcomes.We built a leading... ...’s growing site network.As Director of Patient Randomization... ...across the network. This is a senior role with meaningful ownership... ..., patient education, advocacy engagement, community outreach, and operational...Temporary workWork at office2 days per week- Ipsen seeks an Associate Director, HCP Marketing, Rare Disease to drive U.S. marketing initiatives and promotional activities supporting near-term revenue... ...and multichannel messaging for advisory boards and KOL engagements, with execution of both personal and non-personal...SeniorWork at office
- ...Biogen seeks a US Brand Leader for Rare Diseases to steer the strategic brand plan for Friedreich Ataxia, craft compelling campaigns, and... ...manage risks, and build a high-impact marketing team driving patient access and market awareness. The role demands 12+ years in...Senior
- ...Therapeutics, Inc. We are a rare disease therapeutics company... ...available to patients with significant unmet... ...patients, care partners, and advocacy groups in all of our... ...the Role The Director, Total Rewards will... ...Develop and deliver clear, engaging communications to...Local area
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