Fundraising Consultant
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Fundraising Consultant
We are seeking an experienced Fundraising Consultant to develop and execute a diversified fundraising program dedicated to improving the lives of individuals and families affected by Barth syndrome, an ultra-rare disease affecting approximately 350 known individuals globally.
We aim to raise funds to support scientific research, advance treatments and a cure, provide resources to affected families, and strengthen the global Barth syndrome community.
The role combines strategic planning with hands-on execution across individual, corporate, institutional, government, and digital fundraising channels.
Responsibilities
- Demonstrated fundraising experience within nonprofits, rare diseases, healthcare, medical research, patient advocacy, or other mission-driven organizations.
- Proven success securing funding from individuals, major donors, corporations, foundations, grantmakers, or government bodies.
- Experience managing crowdfunding, peer-to-peer, or digital fundraising campaigns through GoFundMe or similar platforms.
- Strong skills in grant research, proposal writing, donor communications, relationship management, and presentations.
- Ability to translate complex medical or scientific information into clear, credible, and compelling donor messaging.
- Resourceful and entrepreneurial approach to building support for a specialized cause with a small global patient population.
Vacancy posted 5 days ago
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